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Art By: Raul Mosso

Disability Links

Resources and support

This section contains links to resources divided into the following categories:

 

 

General Disability

American Association on Intellectual and Developmental Disabilities - http://www.aamr.org
AAMR promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities.

The Arc - www.thearc.org 

The national organization of and for people with mental retardation and related developmental disabilities and their families. 

The AAC Institute - www.aacinstitute.org 
A not-for-profit charitable organization dedicated to the most effective
communication for people who rely on augmentative and alternative communication.

American Association of People with Disabilities - www. aapd.com
AAPD is the largest national nonprofit cross-disability member organization in the United States. AAPD works in coalition with other disability organizations for the full implementation and enforcement of disability nondiscrimination laws, particularly the Americans with Disabilities Act (ADA) of 1990 and the Rehabilitation Act of 1973.

Association of University Centers on Disabilities (AUCD) - www.aucd.org
AUCD is a network of interdisciplinary centers working with individuals who have disabilities, their families and the community to advance social practice and policies. AUC provides information on advocacy councils, legislative affairs and other useful resources.

Capacity Works - www.capacityworks.com 
Books and posters to inspire person-centered work. Dr. Beth Mount is a national expert in person centered planning working with agencies throughout the United States to help individuals with disabilities achieve their full potential.

Center for Celiac Research - www.celiaccenter.org
University of Maryland Center for Celiac Research is an institution engaged in clinical care, diagnostic support, education, and clinical and basic science research in Celiac Disease. 

Consortium for Citizens with Disabilities - www.c-c-d.org
This is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.

Developmental Delay Resources (DDR) - www.devdelay.org
DDR is a non-profit organization dedicated to meeting the needs of professionals working with children who have developmental delays in sensory, language, social and emotional areas. DDR publicizes vital research that determines identifiable factors related to developmental delays and maintains a registry that tracks possible trends. DDR
also provides a support network for professionals and parents of children with developmental delays. 

Disability Resource Guide
A comprehensive on-line guide of services throughout Westchester County. Alphabetical listing in all categories and areas of service. 

Disability Resources, Inc. - www.disabilityresources.org
Disability Resources is a non-profit organization established to help individuals with disabilities live independently. This website provides information on disability organizations, independent living centers, rehabilitation facilities, educational institutions, and health and social service providers.

Disability Scoop
The Premier Source for Developmental Disability News 

e-Bility - www.ebility.com
This website offers the latest information on the specialized needs of individuals with disabilities. Topics include assistive technology, outdoor adventure for people with disabilities, augmentative communication, special-needs travel and tourism, accessible venues, disability sector funding, conference planning.

Empire State Games - www.empirestategames.org
This website provides information on Empire State Games, a series of sports events for athletes with disabilities. The program is sponsored by New York State and is free of charge for athletes and spectators. Individuals of all ages are invited to participate in activities such as track and field, archery, and swimming on either the competitive or non-competitive level. 

Epilepsy Therapy Development Project - www.epilepsytdp.org
The Epilepsy Therapy Development Project supports innovative research in both academic and industry settings through direct grants and through participation in the Partnership for Research in Pediatric Epilepsy. Their mission is to advance new treatments for people living with epilepsy. 

Exceptional Parent Magazine - www.eparent.com
Online resource providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them. 

Family Village: A Global Community of Disability-Related Resources - waisman.wisc.edu/kennedy
A global community that integrates information, resources, and communication opportunities on the internet for persons with disabilities, families and service providers.

Handmade Poetry by Bob Smith - www.handmadepoetry.com
Bob Smith has been writing poetry since 1991. He has cerebral palsy and uses a Dynavox speech generating device to write and communicate. In 2002 he established a business “Handmade Poetry” and is available to speak with groups about how to work with people who have a disability. 

Hospice & Palliative Care - www.ddhospicepalliativecare.org
Website containing up to date information on hospice and palliative care for people with developmental disabilities. 

Institute on Human Development and Disability - www.ihdd.uga.edu/
Located at the University of Georgia, The Institute on Human Development and Disability works with others to create opportunities that will improve the quality of life for people with disabilities and their families. IHDD advances the understanding of the abilities of all people through education, research and public service.

Institute on Independent Living - www.independentliving.org
Serves self-help organizations of disabled people who work for equal opportunities, self-determination and self-respect. 

JCC on the Hudson - www.jcconthehudson.org
Programming for adults and children with special needs in locations throughout Westchester County. 

Jim Lubin's disABILITY Information and Resources - www.makoa.org
These pages were created and are maintained solely by Jim Lubin, who is a C2 quadriplegic, completely paralyzed from the neck down and dependent on a ventilator to breath

La Fuente 
Informational website for Latinos in Westchester County 

Marc Gold and Associates - www.marcgold.com
A network of consultants specializing in community-based employment for people with disabilities.

Medicare Rights Center (MRC) - www.medicarerights.org
The Medicare Rights Center (MRC) is the largest independent source of healthcare information and assistance in the United States for elder adults and people with disabilities on Medicare. MRC offers educational, advocacy and referral services, as well as a free monthly newsletter and telephone hotline. 

National Ability Center - www.discovernac.org
The National Ability Center is committed to the development of lifetime skills for people of all ages and abilities by providing affordable outdoor sports and recreational experiences in a nurturing environment.. 

National Home of Your Own Alliance - alliance.unh.edu
The National Home of Your Own Alliance is funded by the U.S. Department of Health and Human Services - Administration on Developmental Disabilities, to promote opportunities for people with disabilities to own and control their homes.

The Miracle League of Westchester County - www.mlwny.org 
Their mission is to establish and sustain baseball programs for people (of all ages) with disabilities. The Miracle League of Westchester is open to all residents of Westchester County (ambulatory and non-ambulatory) with disabilities who would enjoy the non-competitive structure of the league. 

The National Center for Children in Poverty - www.nccp.org
The National Center for Children in Poverty has released a series of publications describing the role Social Security plays in protecting children.Whose Security: What Social Security Means to Children and Familiesexplains how children and individuals with disabilities will be affected if Social Security is cut. The brief is available at www.nccp.org/pub_wsw05a.html 

The National Center on Physical Activity and Disability (NCPAD) - www.ncpad.org
NCPAD provides information and resources that enable people with disabilities to become as physically active as they choose to be. This website offers links to popular activities, games, recreational opportunities and sports adapted for individuals with disabilities. It also provides public forums, references, contacts and other useful information.

New York State Association for Retarded Children (NYSARC) www.nysarc.org 
NYSARC is a private not-for-profit Association of fifty-eight chapters serving thousands of New York residents with mental retardation/developmental disabilities.

New York State Association of Community and Residential Agencies (NYSACRA) - www.nysacra.org
NYSACRA is a statewide not-for-profit association that provides advocacy, education, information, technical assistance, public policy analysis, and networking experiences to agencies that offer community living opportunities and supports to people with disabilities and their families.

New York State Division of Human Rights - www.dhr.state.ny
The New York State Division of Human Rights oversees the law that ensures that every individual has an equal opportunity to participate fully in the economic, cultural and intellectual life of the State.

New York State Industries for the Disabled (NYSID) www.nysid.org
A not-for-profit member agency organization – meeting the purchasing needs of state and local government agencies while advancing employment for New Yorkers with disabilities.

New York State Office for People With Developmental Disabilities (OPWDD) www.opwdd.ny.gov
OPWDD coordinates and provides services for people with developmental disabilities and their families and conducts research into the causes and prevention of developmental disabilities. 

Resources for Children with Special Needs - www.resourcesnyc.org 
RCSN serves families of children and young adults with all special needs – social, cognitive, physical, and behavioral – with a focus on the New York City's highest-needs families and communities, and the organizations that serve them.

Social Security Administration - www.ssa.gov
Supplemental Security Income (SSI) & Social Security Disability Insurance (SSDI) information from U.S. Social Security Administration.

Special Needs Alliance - www.specialneedsalliance.com
The Special Needs Alliance, or SNA , is a national network of lawyers dedicated to Disability and Public Benefits Law. 

Special Olympics International - www.specialolympics.org
Special Olympics is an international program of year-round sports training and athletic competition for more than one million children and adults with developmental disabilities. 

Technical Assistance Collaborative - www.tacinc.org
TAC is a national non-profit organization that works to achieve positive outcomes on behalf of people with disabilities, people who are homeless, and people with other special needs by providing state-of-the-art information, capacity building, and technical expertise to organizations and policymakers in the areas of mental health, substance abuse, human services, and affordable housing.

Westchester County Office for the Disabled - www.disabled.westchestergov.com
The office provides services to people with disabilities, their families and caregivers a convenient and accessible means of finding services throughout Westchester County.

Westchester County Department of Transportation - www.westchestergov.com/transportation
Information on Para-Transit and MetroCard services.

Westchester Independent Living Center - www.wilc.org
The Westchester Independent Living Center, Inc. (WILC) is a not-for-profit, community-based advocacy and resource center that serves people with all types of disabilities. 

Westchester Institute for Human Development (WIHD) - www.wihd.org
Services and infomation for children, families and adults with developmental disabilities in Westchester County.
 

Assistive Technology

Lekotek - www.lekotek.org
The country's central source on toys and play for children with special needs. 
 

Westchester Institute for Human Development - www.wihd.org
WIHD is one of 60 university hospital centers that addresses the needs of individuals through professional education, technical assistance and research.

SPROUT - gosprout.org
Innovative programs for people with developmental disabilities, including an Annual Film Festival in New York City. 

 

Autism and Asperger

Asperger Syndrome Information & Support - www.asperger.org

Information, resources and support services for parents and professionals.

The Autism Channel - www.autismchannel.net
The Autism Channel is a place for the discussion of Autism and related disorders such as PDD, Asperger Syndrome, etc. The channel is frequented by parents, siblings, caregivers, teachers, professionals, and anyone with an interest in the topic of autism. 

The Autism Depot - http://home.ptd.net/~rjd/autism/
A resource for parents written from a parent's perspective. It includes short reviews of books and a listing of key resources.

Autism One - www.autismone.org
Education and information covering a broad range of topics for parents, family members, practitioners, educators, researchers and others involved in the care, treatment and recovery of children with Autism.

Autism Research Institute (ARI) - www.autism.org

Dedicated to increasing awareness and educating parents and clinicians regarding biomedicaly based research, appropriate testing and safe and effective treatment for preventing, improving, and when possible, recovering children with Autism. 

Autism Society of America - www.autism-society.org
The Autism Society of America promotes lifelong access and opportunities for persons within the autism spectrum and their families, through advocacy, public awareness, education research.

Autism Speaks - www.autismspeaks.org
Autism Speaks is an organization dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. 

Autism Web - www.autismweb.com
Autism Web is a guide to parents on the diagnosis, treatment and education of children with autism and pervasive developmental disorder. The website contains information on early warning signs, effective treatment and educational conferences It also includes message boards, up-to-date news and an online book store.

Ben Has Autism, Ben Is Awesome by Meredith Zolty 
A tool to help parents begin the difficult and important conversation about autism with their children on the spectrum. .

CARD - Center for Autism and Related Disorders- www.centerforautism.com
One of the world's largest and most experienced organizations effectively treating children with autism and related disorders. 

Foundation for Educating Children with Autism (FECA) www.fecainc.org 
FECA is a non-profit organization dedicated to providing the appropriate educational opportunities for children with autism based on applied behavior analysis (ABA), through the development of schools, inclusion and vocational programs, consumer advocacy and community outreach. 

GRASP (The Global and Regional Asperger Syndrome Partnership) www.grasp.org
An educational and advocacy organization serving individuals on the autism spectrum

Global Autism Project - www.globalautismproject.org
Global network addressing the needs of children with Autism in developing countries.

Heartsong - www.heartsong.org
Music and art therapy for children of all ages with special needs. 

Neurodiversity - www.neurodiversity.com
A website containing resource material from a vast number of websites on autism, reflecting a wide range of information and perspectives. This site also offers a webblog on the subject of autism.

New York Families for Autistic Children - www.nyfac.org
A website containing information, support groups, events and updates in the tri-state area. 

OAR - Organization for Autism Research - www.researchautism.org
An overview of scientific research, how to determine if a particular study may or may not be pertinent to a particular child, and questions to ask with respect to treatments, therapies, and other methodologies under consideration. 

What It's Like by Zak Krooks 
What is it like to grow up in a family with a special needs child? This book explores the unique experience of when a family who has a child with autism goes to an amusement park. 

 

Down syndrome

DownsEd International - www.downsed.org
Down Syndrome Education International works to improve education for young people with Down syndrome. 

Down Syndrome on the Internet - www.downsyndrome.com
A collection of links to information on Down Syndrome from websites from all over the globe.

H. Len Leshin, M.D. - www.ds-health.com
This site is maintained by Dr. Len Leshin, a pediatrician and father of a young son with Down syndrome. He is board certified by the American Board of Pediatrics and is a fellow of the American Academy of Pediatrics.

National Down Syndrome Congress - www.ndsccenter.org
A national organization for parents and professionals. Annual $25 membership includes Down Syndrome News, published throughout the year. Annual conference for families. 

The National Down Syndrome Society - www.ndss.org
Through education, research and advocacy, the National Down Syndrome Society works to ensure that all people with Down syndrome have the opportunity to achieve their fullest potential.