Resources and support
We have compiled a list of informational links and commonly used acronyms that may be useful to you. Arc of Westchester is not responsible for the privacy practices or the content of the following linked sites. These links are provided for your convenience only and you access them at your own risk.
This section contains links to resources divided into the following categories:
American Association on Intellectual and Developmental Disabilities - http://www.aamr.org
AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
The Arc - www.thearc.org
The Arc is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. We encompass all ages and more than 100 different diagnoses including autism, Down syndrome, Fragile X syndrome, and various other developmental disabilities.
The AAC Institute - www.aacinstitute.org
A not-for-profit charitable organization dedicated to the most effective
communication for people who rely on augmentative and alternative communication.
American Association of People with Disabilities - www. aapd.com
The American Association of People with Disabilities is the nation's largest disability rights organization. We promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Our members, including people with disabilities and our family, friends, and supporters, represent a powerful force for change.
Association of University Centers on Disabilities (AUCD) - www.aucd.org
AUCD is a network of interdisciplinary centers working with individuals who have disabilities, their families and the community to advance social practice and policies. AUC provides information on advocacy councils, legislative affairs and other useful resources.
Capacity Works 2 - www.capacityworks2.com
Books and posters to inspire person-centered work. Dr. Beth Mount is a national expert in person centered planning working with agencies throughout the United States to help individuals with disabilities achieve their full potential.
Center for Celiac Research - www.celiaccenter.org
The Center for Celiac Research and Treatment is dedicated to improving the quality of life for patients with celiac disease, while learning the cause of the disease and finding a cure. The Center provides comprehensive clinical care and long-term support for adults and children who suffer from celiac disease.
Consortium for Citizens with Disabilities - www.c-c-d.org
This is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
Developmental Delay Resources (DDR) - www.devdelay.org
DDR is dedicated to meeting the needs of children with developmental delays in sensory, motor, language, social, and emotional areas. DDR is the ONE resource network integrating conventional and holistic approaches for parents and professionals who support children with special needs.
Disability Resource Guide
A comprehensive on-line guide of services throughout Westchester County. Alphabetical listing in all categories and areas of service.
Disability Resources, Inc. - www.disabilityresources.org
Disability Resources, inc. is a nonprofit organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently.
The Premier Source for Developmental Disability News
e-Bility - www.ebility.com
This website offers the latest information on the specialized needs of individuals with disabilities. Topics include assistive technology, outdoor adventure for people with disabilities, augmentative communication, special-needs travel and tourism, accessible venues, disability sector funding, conference planning.
Empire State Games - www.empirestategames.org
This website provides information on Empire State Games, a series of sports events for athletes with disabilities. The program is sponsored by New York State and is free of charge for athletes and spectators. Individuals of all ages are invited to participate in activities such as track and field, archery, and swimming on either the competitive or non-competitive level.
Exceptional Parent Magazine - www.eparent.com
Online resource providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
Hospice & Palliative Care - www.ddhospicepalliativecare.org
Website containing up to date information on hospice and palliative care for people with developmental disabilities.
INCLUDEnyc - www.includenyc.org
INCLUDEnyc is New York City’s only independent nonprofit organization that works for families and young people with all disabilities to develop their full potential.
Institute on Human Development and Disability - www.ihdd.uga.edu/
Located at the University of Georgia, The Institute on Human Development and Disability works with others to create opportunities that will improve the quality of life for people with disabilities and their families. IHDD advances the understanding of the abilities of all people through education, research and public service.
JCC on the Hudson - www.jcconthehudson.org
Programming for adults and children with special needs in locations throughout Westchester County.
Jim Lubin's disABILITY Information and Resources - www.makoa.org
These pages were created and are maintained solely by Jim Lubin, who is a C2 quadriplegic, completely paralyzed from the neck down and dependent on a ventilator to breath
Informational website for Latinos in Westchester County
Marc Gold and Associates - www.marcgold.com
Marc Gold & Associates consists of a network of consultants that provide training and technical assistance to systems, agencies, and families interested in ensuring the complete community participation of people with significant disabilities.
Medicare Rights Center (MRC) - www.medicarerights.org
The Medicare Rights Center (MRC) is the largest independent source of healthcare information and assistance in the United States for elder adults and people with disabilities on Medicare. MRC offers educational, advocacy and referral services, as well as a free monthly newsletter and telephone hotline.
National Ability Center - www.discovernac.org
The National Ability Center is committed to the development of lifetime skills for people of all ages and abilities by providing affordable outdoor sports and recreational experiences in a nurturing environment..
The Miracle League of Westchester County - www.mlwny.org
Their mission is to establish and sustain baseball programs for people (of all ages) with disabilities. The Miracle League of Westchester is open to all residents of Westchester County (ambulatory and non-ambulatory) with disabilities who would enjoy the non-competitive structure of the league.
The National Center for Children in Poverty - www.nccp.org
The National Center for Children in Poverty (NCCP) is one of the nation’s leading public policy centers dedicated to promoting the economic security, health, and well-being of America’s low-income families and children. NCCP uses research to inform policy and practice with the goal of ensuring positive outcomes for the next generation. We promote family-oriented solutions at the state and national levels.
The National Center on Physical Activity and Disability (NCPAD) - www.ncpad.org
NCPAD provides information and resources that enable people with disabilities to become as physically active as they choose to be. This website offers links to popular activities, games, recreational opportunities and sports adapted for individuals with disabilities. It also provides public forums, references, contacts and other useful information.
New York State Association for Retarded Children (NYSARC) www.nysarc.org
NYSARC is a private not-for-profit Association of fifty-eight chapters serving thousands of New York residents with mental retardation/developmental disabilities.
New York State Association of Community and Residential Agencies (NYSACRA) - www.nysacra.org
NYSACRA is a statewide not-for-profit association that provides advocacy, education, information, technical assistance, public policy analysis, and networking experiences to agencies that offer community living opportunities and supports to people with disabilities and their families.
New York State Division of Human Rights - www.dhr.state.ny
The New York State Division of Human Rights oversees the law that ensures that every individual has an equal opportunity to participate fully in the economic, cultural and intellectual life of the State.
New York State Industries for the Disabled (NYSID) www.nysid.org
A not-for-profit member agency organization – meeting the purchasing needs of state and local government agencies while advancing employment for New Yorkers with disabilities.
New York State Office for People With Developmental Disabilities (OPWDD) www.opwdd.ny.gov
OPWDD coordinates and provides services for people with developmental disabilities and their families and conducts research into the causes and prevention of developmental disabilities.
Social Security Administration - www.ssa.gov
Supplemental Security Income (SSI) & Social Security Disability Insurance (SSDI) information from U.S. Social Security Administration.
Special Needs Alliance - www.specialneedsalliance.org
The Special Needs Alliance, or SNA , is a national network of lawyers dedicated to Disability and Public Benefits Law.
Special Olympics International - www.specialolympics.org
Special Olympics is an international program of year-round sports training and athletic competition for more than one million children and adults with developmental disabilities.
Technical Assistance Collaborative - www.tacinc.org
TAC is a national non-profit organization that works to achieve positive outcomes on behalf of people with disabilities, people who are homeless, and people with other special needs by providing state-of-the-art information, capacity building, and technical expertise to organizations and policymakers in the areas of mental health, substance abuse, human services, and affordable housing.
Westchester County Office for the Disabled - www.disabled.westchestergov.com
The office provides services to people with disabilities, their families and caregivers a convenient and accessible means of finding services throughout Westchester County.
Westchester County Department of Transportation - www.westchestergov.com/transportation
Information on Para-Transit and MetroCard services.
Westchester Independent Living Center - www.wilc.org
The Westchester Independent Living Center, Inc. (WILC) is a not-for-profit, community-based advocacy and resource center that serves people with all types of disabilities.
Westchester Institute for Human Development (WIHD) - www.wihd.org
Services and infomation for children, families and adults with developmental disabilities in Westchester County.
Lekotek - www.lekotek.org
The country's central source on toys and play for children with special needs.
Westchester Institute for Human Development - www.wihd.org
WIHD is one of 60 university hospital centers that addresses the needs of individuals through professional education, technical assistance and research.
SPROUT - gosprout.org
Innovative programs for people with developmental disabilities, including an Annual Film Festival in New York City.
Information, resources and support services for parents and professionals.
Autism One - www.autismone.org
Education and information covering a broad range of topics for parents, family members, practitioners, educators, researchers and others involved in the care, treatment and recovery of children with Autism.
Dedicated to increasing awareness and educating parents and clinicians regarding biomedicaly based research, appropriate testing and safe and effective treatment for preventing, improving, and when possible, recovering children with Autism.
Autism Society of America - www.autism-society.org
The Autism Society of America promotes lifelong access and opportunities for persons within the autism spectrum and their families, through advocacy, public awareness, education research.
Autism Speaks - www.autismspeaks.org
Autism Speaks is an organization dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder.
Autism Web - www.autismweb.com
Autism Web is a guide to parents on the diagnosis, treatment and education of children with autism and pervasive developmental disorder. The website contains information on early warning signs, effective treatment and educational conferences It also includes message boards, up-to-date news and an online book store.
Ben Has Autism, Ben Is Awesome by Meredith Zolty
A tool to help parents begin the difficult and important conversation about autism with their children on the spectrum. .
CARD - Center for Autism and Related Disorders- www.centerforautism.com
One of the world's largest and most experienced organizations effectively treating children with autism and related disorders.
Foundation for Empowering Citizens with Autism (FECA) www.fecainc.org
FECA is a non-profit organization dedicated to advocating for appropriate educational, vocational, employment, community outreach and integration, treatment, and other related programs and services on behalf of individuals on the autism spectrum.
GRASP (The Global and Regional Asperger Syndrome Partnership) www.grasp.org
An educational and advocacy organization serving individuals on the autism spectrum
Global Autism Project - www.globalautismproject.org
Global network addressing the needs of children with Autism in developing countries.
Heartsong - www.heartsong.org
Music and art therapy for children of all ages with special needs.
New York Families for Autistic Children - www.nyfac.org
A website containing information, support groups, events and updates in the tri-state area.
OAR - Organization for Autism Research - www.researchautism.org
An overview of scientific research, how to determine if a particular study may or may not be pertinent to a particular child, and questions to ask with respect to treatments, therapies, and other methodologies under consideration.
What It's Like by Zak Krooks
What is it like to grow up in a family with a special needs child? This book explores the unique experience of when a family who has a child with autism goes to an amusement park.
DownsEd International - www.downsed.org
Down Syndrome Education International works to improve education for young people with Down syndrome.
H. Len Leshin, M.D. - www.ds-health.com
This site is maintained by Dr. Len Leshin, a pediatrician and father of a son with Down syndrome. He is board certified by the American Board of Pediatrics and is a fellow of the American Academy of Pediatrics.
National Down Syndrome Congress - www.ndsccenter.org
A national organization for parents and professionals. Annual $25 membership includes Down Syndrome News, published throughout the year. Annual conference for families.
The National Down Syndrome Society - www.ndss.org
Through education, research and advocacy, the National Down Syndrome Society works to ensure that all people with Down syndrome have the opportunity to achieve their fullest potential.